SummeRun Stories

Lisa Thompson
2009 SummeRun Honoree

In 2007, Lisa Thompson noticed her abdomen was increasing in size. When the problem did not subside, Lisa saw a doctor and was eventually diagnosed with Stage IIIc ovarian cancer. Determined to do something positive, Lisa, along with her sister Darcy, gathered family and friends to be part of the "Hell's Angels" team in the 2007 SummeRun. She completed her first cycle of treatment and walked in the SummeRun four days later. She found that having a purpose larger than her treatment was empowering. “The fight against cancer has many fronts - raising money for the Marsha Rivkin Center is as important to me as going to treatment.” she says.

A year later, doctors found new tumors on her liver and spleen and Lisa started undergoing more treatment. Her "Hell's Angels" team gathered once again to participate in the 2008 Swedish SummeRun.

"The first year, I felt we were raising money for prevention. After my recurrence, I realized that we are now funding the researchers who are going to keep me alive." Lisa knows that ovarian cancer can happen to anyone - she has no family history of the disease - and believes that we need to improve both detection and treatment of ovarian cancer. Lisa is still in treatment and adjusting to her "new normal." She finds strength in her involvement with the SummeRun, and continues to be passionate about the need to raise funds for ovarian cancer research.

We are thrilled to announce Lisa Thompson is our 2009 SummeRun Honoree.

Gerrianne
Ovarian and Breast Cancer Alliance Team

I am an oncology RN. I was diagnosed in July of 2002 at age 43 years old with Stage 
IIIc ovarian cancer. I had had a hysterectomy in 1997 for uterine fibroids, but my 
ovaries remained because I was told I was too young to have them removed.  
Both my grandmother and great aunt died of ovarian cancer - my great aunt 
with breast and ovarian before age 50 and my grandmother in her 80's. At the 
time of my hysterectomy I was not offered an opportunity for genetic testing 
and the family history was discounted because it was removed by one 
generation and was on my father's side of the family. We know much more now about genetics and 
family history than we did in 1997.

My early symptoms included back and sciatic pain with weight gain and 
abdominal bloating. I did see doctors about my back with no diagnosis. In 
April 2002 I saw a gynecologist Nurse Practitioner because of overwhelming 
fatigue and just not feeling right. I had a negative exam. Three months 
later, I was diagnosed after not being able to tolerate sitting because of 
pain.

Fortunately I had access to a gynecology oncologist and received excellent 
surgical debulking and followup with an experienced oncologist. I had six 
cycles of carbo/taxol and then f/u with second look surgery and IP treatment 
with Topotecan for 4 cycles in an experimental trial here in Seattle. I have 
continued to have low CA125 levels and do regular followup with my doctors. I 
find it  challenging to evaluate the pros/cons of prophylactic masectomy. I 
do alternating mammograms and breast MRI at this time.

My diagnosis in July 2002 happened while I was working full time and deeply 
involved in caring for my mother and stepfather's health issues. The year 
before my diagnosis was stressful for our whole family. We lost my stepfather 
three months after my diagnosis.  My mother was recovering and learning to 
move after a below the knee amputation. It was a pretty overwhelming time. My 
mother died in early 2005 of lung cancer.

My biggest inspiration was my daughter, Kelsey, and her new horse, Kipper. I 
had to drive her to lessons and loved being out at the barn. Being around 
the girls and other parents kept me focused on enjoying every day. My 
knowledge as an oncology RN was sometimes hard to shut off. Being outdoors 
with animals in all kinds of weather helped me a lot. It was hard because I 
worried about missing my daughter's growing up if I did not survive. I did 
not want to miss a moment.

Time has passed, and our family has moved through the immediate survival fears 
into a new normal. I celebrated 7 years this July! I have used my love for 
horses to overcome my fatigue and face my fears. My husband understands the 
motivation I gain being with our horse and supports me 100%. I took
over the care and riding of our current horse, Atticus, when my daughter 
joined the Navy in 2007.

Faith has been instrumental and I am grateful for special friends who have 
shared spiritual support and prayers. I really believe that it is important 
to push physically to regain strength after surgery and chemotherapy. And it 
is important to find an activity that is not only physical, but mentally and 
spiritually uplifting.

I have been protective with my time and energy, often with worry about 
whether my cancer will come back. I had a five year plan to do many things 
on my wish list. I have done some of them and have more to do. Right now, I 
feel strong and able to begin more public advocacy efforts for ovarian and 
breast cancer awareness, especially for those women with genetic markers. It 
is new for me to become more public about my own personal history. I am eager 
to help the Ovarian and Breast Cancer Alliance of WA Team for the Swedish 
SummerRun 2009.

Marcine
Our Mom

We lost our mom, Marcine back in 1997 and there is not a day that goes by 
that we do not think of her. We remember her beautiful face, her humor, her love for her 
family and her  Lord, the Good Shepherd. She always loved lambs (see photo) and I 
believe this gave her peace.

We have had our entire family and many friends help and support us, we are 
most thankful. My sister, my wonderful friends and I are participating in this run to 
support the Marsha Rivkin foundation to help continue to find a cure for 
ovarian cancer.

Conny
Conny's Corner

Conny is a friend and co-worker of mine.  She is an Occupational 
Therapist at Providence Saint Peter Hospital in Olympia, WA.  Conny is an 
ovarian cancer survivor and a woman with incredible spirit, tenaciousness, 
and courage.  Last summer Conny asked me if I would participate in the Subaru 
Women's Triathlon in Federal Way to support the Ovarian Cancer Research Fund. 

Conny was hesitant to participate herself as she had undergone an extensive 
surgery and chemo not that many months prior.  I said "yes, of course" and 
slowly got myself training.  Conny was curious about the race and with just a 
little encouragement decided to "go for it".  What a privledge to participate 
along side Conny while she completed her first ever triathlon!  Amazing!

Several weeks ago I came into work and found the Swedish SummeRun Info lying 
out on the desk.  I immediately asked Conny and other coworkers if I could 
head up a team of rehab therapists, family, and friends of Conny.  Conny is 
just starting her second round of chemo, but is planning on participating or 
cheering on race day.  We named ourselves "Conny's Corner", hoping to let our 
dear friend know that she is not alone in this.  Hopefully seeing our team of 
28 brightly colored tie-dyed t-shirts running and walking together on race 
day will help to buoy Conny's spirit as she fights this disease head on.  
Conny's husband and two children will all be a part of our team.

Mary Anne Kobylka
2008 SummeRun Honoree

In February 2004, Mary Anne was undergoing a routine annual medical examination when her doctors found carcinoma cells.“I felt like I was on a roller coaster and we were screaming toward the bottom,” she said. Through surgery, it was determined that she had Stage IIc ovarian cancer. Mary Anne immediately started chemotherapy.

"When you have cancer, you have little control. Training for an event and raising money has helped me to feel in control of my own life again,” she said. In 2007, Team Mary Anne raised a record-breaking $23,000 for the Marsha Rivkin Center. “Doing something physical and raising funds for research has been a huge part of my recovery,” she said.

Mary Anne was our 2008 Swedish SummeRun Survivor Honoree. Her team, Team Mary Anne, raised over $47,350 last year and has raised over $50,000 to date this year.

Editor's note: Sadly, Mary Anne lost her battle with ovarian cancer on July 7, 2009. Our thoughts are with her family and friends. She will be missed.

Judy Johnson
Team Dick's Crew

In the spring of 1999, Judy was having multiple health problems. Judy’s doctors suspected problems with her gall bladder or a kidney cyst, but according to Judy and her son, Tim, a lab technician, her symptoms “simply didn’t add up.” Tim gave his mother an ultrasound and immediately saw what he describes as a "massive tumor that I knew was not benign." Judy was diagnosed with stage I-C ovarian cancer, an early stage of the disease.

Judy has been in remission since 2000 and her strength and determination are as strong as always. She still has her CA 125 levels tested every month.

Judy has been helping with the fight against ovarian cancer by organizing the team “Dick’s Crew” every year since she completed treatment in 2001.

 

Joyce McCallum
2006 SummeRun Honoree

Joyce, like so many women with ovarian cancer, had several relevant symptoms prior to her own diagnosis, including abdominal bloating, pain, and heavy vaginal bleeding. Joyce says, "I felt in-tune with my body, and it was telling me something was not right."

However, her primary care physician did not think it necessary to do further testing, so Joyce contacted a gynecologist, who advised her to have a CA 125 blood test and a vaginal ultrasound. Joyce learned of her diagnosis with Stage I ovarian cancer when she underwent a complete hysterectomy and removal of an enlarged ovary in 2004, at the age of 46. Joyce feels fortunate to have been diagnosed at an early stage.

She regards the SummeRun as an opportunity to raise awareness and funds and ultimately, to save lives.

Imogene Bertram
IMO's Kids - In Memory of Imogene Bertram

We created IMO’s Kids in honor of our mother, Imogene Bertram. Diagnosed in 2000 with stage 3C ovarian cancer, our mom was the matriarch of our family and like most families, was the one who held everything together. When we first learned of the diagnosis, we were in shock. In 1972, Mom had undergone a hysterectomy and all of us had understood her ovaries to have been removed. Imagine our surprise at an ovarian cancer diagnosis!

Treatments were challenging and painful. Mom complained very little and continued to have a wonderful attitude about life. She kept the rest of us thinking positively. When the day came that she knew a cure would not happen in her lifetime, she continued to pray for a cure to save other women from this devastating disease.

Faith, prayers, and bits of good news from doctors kept Mom going for two full years, always with a smile on her face.

In 2002, after hearing about the event from a friend, I participated in my first Swedish SummeRun. The day was transforming for me in many ways. I gathered information and made a commitment to form a team of family members and friends for the following year - 2003. In January 2003 we were told there was no hope - the cancer had spread and there was nothing more that could be done. Our mother succumbed to ovarian cancer on May 31, 2003.

We have participated in the Swedish SummeRun every year since then. I will continue to support this event with our team, "Imo's Kids", in memory of our mother and in honor of all women with ovarian cancer. We will fight with them until the day a cure is found!!

Maggie
Team Lilac

My name is Maggie and I was diagnosed with Stage IIIC ovarian cancer in April of 2004 after a second trip to my family doctor complaining of feeling bloated. I had surgery at Swedish a month later and have been hospitalized there many times. I cannot give the nurses on 12E enough praise for the care I have always received from them. I had one seven month remission in 2005; the rest of the time the cancer has returned within two months of ending chemo. I am now on chemo #11, living my life and enjoying my children and grandchildren.

After attending a SummeRun kick-off meeting in June 2008 where I heard how other survivors built their teams, I became excited to participate for the first time. With the help of high school friends, neighbors and family, I organized Team Lilac to join the ranks of ovarian cancer research supporters at the SummeRun.The love and support I receive from my two daughters and my high school girlfriends fuels my strength and determination to survive and continue to support this important foundation. We must find a way to stop this overwhelming disease.

P.S. I was in Swedish ICU for the 2008 SummeRun. The nurses allowed my team of 20+ members to come into my room for a celebration and pictures. This year I will be crossing the finish line with my team.

Teresa
Little Cooper Saved Teresa

At the age of 29, our daughter Teresa, was pregnant with little Cooper when doctors discovered she had a cist on one of her ovaries. After delivery, she kept having stomach pains and went to see her OB/ Gyn. The doctors discovered the cist had grown very large and decided to remove it. She was just 30 years-old when, in exploring the removed cist, doctors found two clear cell cancer cells in the ovary. They did a complete hysterectomy removed her appendix, and all came back negative; the cancer had not spread.  Teresa has undergone six chemo therapy treatments in the last year and on May 18, 2009 she went to her doctor and received a clean bill of health!!

We participate in the SummeRun to support our wonderful daughter and all of the other strong survivors who are fighting this devestating disease. The photo is of Teresa and Cooper-who saved her life!